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Resources

Below you will find some resources that many of my clients have found helpful. They include resources to help you understand medical terminology, articles about why others have felt the need for advocacy, and some resources for some of the most common medical conditions I have worked on with clients.

Where to look for trustworthy medical information:

www.uptodate.com
This is a very good and detailed explanation of just about everything. It will tell you all kinds of treatments for all kinds of problems.
www.webmd.com/
Also a very good and trustworthy website for information.
www.health.nih.gov/
This is a government website, and it has information about the health of different cultural groups (African, Hispanic, etc). It also has information about clinical trials (these are studies where a new treatment is being used and you have to be part of the study to get the treatment).
www.mayoclinic.com/
An excellent, trustworthy site for health information from one of the best medical centers in the country, and in fact, the world.
www.health.yahoo.net/
Good site for health information, very popular.
www.healthcare.gov/
This is an amazingly good website that the government has just put up that deals with all the recent and evolving changes in the healthcare laws. It also helps you figure out where to get insurance based on where you live and your general information. It does not require any personal information for these answers.
www.babylon.com/define/63/Medical-Terminology-Dictionary.html
This is a good site to look up a medical word you don’t understand.
www.medlineplus.gov/

Medline plus—health information.
www.familydoctor.org
Symptom decision trees, self-care information.

Resources for specific medical conditions:

Cancer

www.cancer.gov
National Cancer Institute provides information on types of cancer, clinical trials, drug protocols, sites for treatment of cancers
www.breastcancer.org
Risk, diagnosis and treatment information
www.cancer.org/docroot/home/
American Cancer Society

Heart disease and Stroke

www.americanheart.org
American Heart Association.
www.nhlbi.nih.gov
Symptoms, diagnosis and treatment.

Diabetes

www.diabetes.niddk.nih.gov
Guide to diabetes care and research.
www.diabetes.org
Nutrition information, prevention, treatments.

Patient Safety

www.campaignzero.org/
www.hospitalcompare.hhs.gov
Hospital success rates by diagnosis and surgery.

Aging

Aging with Pride:  National Health, Aging, and Sexuality/Gender Study
www.alz.org
Alzheimer's Association
www.medicare.gov/
Medicare
www.naela.org
National Academy of Elder Law Attorneys Inc.
www.caremanager.org/
National Association of Professional Geriatric Care Mangers
www.ncoa.org/
National Council on Aging

Medications

www.drugs.com
Pill identification, side effects and drug interactions.
www.nlm.nih.gov/medlineplus/druginformation.html
Information on drugs, drug interactions, usage, side effects. Includes information on mineral and vitamin supplements.
www.fda.gov
Research on medications and drug safety.

Books about medical care—what every patient should know:

Your Medical Mind: How to Decide What Is Right for You
by Jerome Groopman, MD and Pamela Hartzband, MD
Complications: A Surgeon's Notes on an Imperfect Science
By Atul Gawande
Better: A Surgeon's Notes on Performance
By Atul Gawande
The Checklist Manifesto: How to Get Things Right
By Atul Gawande
You, the Smart Patient: An Insider’s Handbook for Getting the Best Treatment
by Mehmet Oz, M.D., and Michael Roizen M.D.
How Doctors Think
by Jerome Groopman, MD

Articles:

www.linkedin.com
NPR story about toll on caregivers for family members

Good articles about the need for healthcare advocates:

www.online.wsj.com
Wall Street Journal—When a doctor isn’t enough
www.dailyfinance.com
From Daily Finance: How a patient advocate can help if you are caught in a medical nightmare.
www.nytimes.com
The New York Times: Knowledge is Power.
www.newyorker.com
Excellent article about a difficult topic—what should medicine do when it can’t save your life?